"Adventures, I used to call them. I used to think that they were things the wonderful folk of the stories went out and looked for, because they wanted them, because they were exciting and life was a bit dull...But that's not the way of it with the tales that really mattered, or the ones that stay in the mind. Folk seem to have just landed in them, usually...I expect they had a lot of chances, like us, of turning back, only they didn't. And if they had, we shouldn't know, because they'd have been forgotten."

-Samwise Gamgee, The Lord of the Rings

Friday, November 1, 2013

Halloween is over.... time to Christmas shop!

We had a great Halloween! Big A doesn't dress up anymore, he has enjoyed handing out candy for the last few years. Anth was a wolf again, Alina was an astronaut, and Anna was a pirate!

And I was only partially kidding about Christmas shopping.... my Etsy shop is open and taking orders for Christmas! I have six ready to ship dolls at special prices, and custom listings as well if you would like to order a specific doll. I can make them to look like your favorite kid, your kids favorite characters, or just about anything!

This little cutie has long red braids and green eyes! She's so sweet!

This cutie patootie has black hair and little curly pigtails, and black eyes! She's adorable!

There are many more, and also the custom listings. I can embroider your childs name, birth date or special day on the dolls for no charge!
Click here to visit my Etsy shop!!

Friday, October 18, 2013

Falling for Fall

The kids are out of school for MEA weekend..... and we've had a couple lazy days hanging out together. While I had grand hopes of sleeping in.... the kids were all up both days before 7am. :)

But we did get some nice weather and headed out for a couple pictures..

So funny! Al is being good, Anth is bored cheesing, Alina is rolling her eyes and Anna is being her typical clown self.

Monday, October 14, 2013

Walking progress, 6 months post rhizotomy

A is now 6 months post SDR (Selective Dorsal Rhizotomy). Every day the changes in her amaze me. She's always been independent, but she can easily do things with ease now, instead of struggling with even the simplest tasks because of poor balance.

One thing that has changed dramatically for her is her walking. Before the rhizotomy, she could walk independently, however her walking was awful. She crouched, her knees touched, her feet turned all the way in, her arms were up in high guard and her back bowed/belly stuck out for balance, and she just couldn't support herself well. She used her walker most of the time, or she preferred to crawl at home.

Last week at therapy she leaned forward and rested on the edge of the ball pit, and was throwing balls back in. She then pushed herself back and stood upright with no assistance and had zero problems with moving herself back upright and standing. It was incredible!

This first video is Alina's gait lab nearly two years ago. Her walking was pretty much the same right before surgery.


These two are from this weekend.... walking with her crutches and 'off roading' with them. 

 She had her 6 month follow up appointment today with ortho and PT. Both are impressed with how well she is doing and think she looks great! Pretty much said keep doing what we were doing and see you in a few months!

Wednesday, September 11, 2013

Back to school!

What a glorious time of year! :) I'm joking. Kind of. The kids all started back to school last week, and thankfully they all enjoy school and were looking forward to starting.

Al is in 6th grade this year. I still cannot believe he's that old. This is his first year in the middle school. He's still as confident as ever, and I know he'll do just as well in 6th grade as he has in the last 5.

Anth is in 2nd grade. This is his last year in the primary! He's my social guy and came home telling me about the new friends he made the first day. His teacher was impressed with his reading skills, and I love to watch him devour books and excitedly tell us all about them.

Alina started Kindergarten! Talk about being excited! This girl couldn't wait! Its been a bit tricky to get her therapies all figured out since she's in school full time now, but I think we have it. She's only missing a few minutes of school two days a week, the rest they got before or after school! So far, she loves school and is thriving. She's working really hard on her forearm crutches and doing very well with therapy.

Here is an obligatory first day of school pic. Anna carried her shoes around and was pretty miffed she wasn't able to get on the bus too. But she got over it when she realized she had mom all to herself all day. :)